Phillip had a follow up appointment with the neurologist this past week. We spent about an hour in the waiting room, about half an hour with one of the neurology fellows (or whatever they are called), and about 30 seconds with the doctor (that's only a slight exaggeration). I was VERY disappointed in that. We have been seeing the same neurologist since Phillip was around 6 and he was NOT like that when we started there. He spent plenty of time with us, always asked if we had any questions, etc. I think he is getting too many patients and not spending the time he should with the ones he has. Anyway...
We discussed the fact that he hasn't gone longer than a couple of months between seizures and that we wanted to be proactive in warding off anymore seizures - so we decided to switch his medications all over to Extended Release tabs. Most of the time with E.R. tabs- you just take them once a day instead of twice (like we do now)... however - given Phillip's history and the fact that his seizures are so hard to control, we decided to keep his on a twice a day regimen. This will (hopefully) keep the medication in his system at a steadier level for a longer amount of time - instead of being low at medication time, going way up after meds, and then dropping low again at medication time. **Hoping/ praying for EXCELLENT control from this change!**
I only got to ask the fellow about his EEG test and she said that there was slowing in part of his brain (but its always been that way so its nothing new) and nothing else outstanding. I asked her about the photic test and she said there was nothing noted at the end of the EEG write up - so that normally means that nothing was found. I didn't get to ask Dr. G if he had watched the videos I sent him or anything I will be sending him an email tomorrow to discuss all these matters.
I think that is all for now. I am a little tired so forgive me if I rambled or didn't make sense. :0)
May you all have a blessed day. Love, Phillip & Misty
We discussed the fact that he hasn't gone longer than a couple of months between seizures and that we wanted to be proactive in warding off anymore seizures - so we decided to switch his medications all over to Extended Release tabs. Most of the time with E.R. tabs- you just take them once a day instead of twice (like we do now)... however - given Phillip's history and the fact that his seizures are so hard to control, we decided to keep his on a twice a day regimen. This will (hopefully) keep the medication in his system at a steadier level for a longer amount of time - instead of being low at medication time, going way up after meds, and then dropping low again at medication time. **Hoping/ praying for EXCELLENT control from this change!**
I only got to ask the fellow about his EEG test and she said that there was slowing in part of his brain (but its always been that way so its nothing new) and nothing else outstanding. I asked her about the photic test and she said there was nothing noted at the end of the EEG write up - so that normally means that nothing was found. I didn't get to ask Dr. G if he had watched the videos I sent him or anything I will be sending him an email tomorrow to discuss all these matters.
I think that is all for now. I am a little tired so forgive me if I rambled or didn't make sense. :0)
May you all have a blessed day. Love, Phillip & Misty