Hello :) I hope you are well. I just wanted to quickly let you know that Phillip's Video EEG is scheduled for July 7th. We will first go to the EEG lab to have him sedated and have his leads put on (he has to be sedated because he will not be still for them to put the leads on) and then we will go to the EMU (epilepsy monitoring unit) where we will remain for 3-5 days.
For those of you that don't know what this involves, I will explain: if you do know, feel free to jump to the next paragraph. During our stay at the EMU he will stay hooked up to the leads and will be videoed 24 hours a day. We will have to stay in the EMU room the whole time so that everything is on the video. Whenever he has an episode, I will push a button, an alarm will sound, people will rush in and notes will be made on his chart including time, what he was doing, and if he's having any post-ictal issues. And we will continue that way for 3-5 days.
I am very happy to say that I have a wonderfully supportive family and I had no trouble finding help with my girls while I am going to be gone with Phillip. I am not sure what I would do without my family! We are truly blessed.
So anyway, if you will please have us in your thoughts and prayers around the 7th I would appreciate it. As well as hopes and prayers that we get answers as to whether or not these episodes are seizures. God Bless, Misty
For those of you that don't know what this involves, I will explain: if you do know, feel free to jump to the next paragraph. During our stay at the EMU he will stay hooked up to the leads and will be videoed 24 hours a day. We will have to stay in the EMU room the whole time so that everything is on the video. Whenever he has an episode, I will push a button, an alarm will sound, people will rush in and notes will be made on his chart including time, what he was doing, and if he's having any post-ictal issues. And we will continue that way for 3-5 days.
I am very happy to say that I have a wonderfully supportive family and I had no trouble finding help with my girls while I am going to be gone with Phillip. I am not sure what I would do without my family! We are truly blessed.
So anyway, if you will please have us in your thoughts and prayers around the 7th I would appreciate it. As well as hopes and prayers that we get answers as to whether or not these episodes are seizures. God Bless, Misty